Most health services have been designed around an acute care model but long term conditions (LTCs) are different and need different ways of thinking and working.  

People with LTCs drew the above picture at a world café event to show what it is like to live with a LTC.

The green wavy line represents the ups and downs of daily life, when the person is managing their condition and their life. The vertical orange lines represent the contact points with health and social care.

This highlights two important factors:

  • The contact with professionals is limited and represents a small part of someone’s overall life (three hours of healthcare versus 8757 hours of self-care)
  • The contact with healthcare is often arranged at regular intervals, unrelated to real life events or the needs of the person involved.